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My health journey
dawfanfromalabam
Posts: 1,088 ✭✭✭✭✭ Graduate
Summary of my cancer journey
8/22 - Diagnosed stage 2 liver cancer, 7cm tumor
10/22- begin 3 weeks of 5 days a week external beam radiation ending 11/23
3/23 - clear scan
6/23 - clear scan
9/23 - 2cm tumor found. Was part of original tumor just outside the margin of good tissue they took. Told it was microscopic and that’s why it didn’t get treated.
10/23 - as can’t radiate but once per year, put on immunotherapy through 11/23 - sick as a dog after each treatment
12/23 - radiation oncologist treating me dies unexpectedly. No other radonc will try treatment due to advancing cirrhosis
1/24 - begin eval for transplant in ATL and Houston. Mayo in JAX on hold due to worsening health
3/24 - tumor growth stops transplant treatment plans
4/24 - start process to treat tumor with internal radiation
5/24 - getting radiation later this week
Along the way, it’s been rough…
11/23 - hepatic encephalopathy (toxins not filtered by liver) lands me in ER incoherent. Treatment clears toxins and put on $3400 a month medication to help filter toxins
12/23 - dehydrated so much can barely crawl. Week in hospital with cellulitis and staphylococcus infection in my bloodstream.
1/24 - 2 weeks additional in home antibiotic injections 3 times a day
Late 1/24 - back in hospital dehydrated and kidneys shutting down. Change in meds stops kidney issue. Begin weekly paracentheis treatments - needle then catheter through abdominal wall to drain ascetic fluid leaking from veins/arteries around liver. As fun as it sounds.
2/24 - hospitalization with dehydration due to infected ascites fluid. 12/23 through 3/24 can’t eat or barely drink, lose 40 pounds
3/24 - finally able to drink/eat a little. Hospitalized for 4 days for shortness of breath when lying down, new ailment is HPS (hepatic pulmonary syndrome) where veins in lung swell due to back pressure from cirrhotic liver. Put on at home O2, no cure except transplant
What a long strange trip it’s been. Please pray for me and I get the transplant. Time is running low.
Comments
**** brother, that does not look fun. Just had client get a heart transplant here in Birmingham…if you’re on the list it will happen, just need enough time.
hang in there dawg…make the best of whatever time the good Lord has allotted for you…that's what we all need to do, right?
Praying for healing and continued strength to keep fighting.
Keep up the good fight! What you have been thru is terrible, wishing for your speedy recovery.
Go's bless you for a recovery
Sending up Prayers 🙏🏼 for healing and the faith and strength to continue your fight. Comfort for you and your family during this stressful time. God bless you.
You keep fighting, ok?
Prayers sent for a full recovery.
Actual prayers. Not just saying that randomly.
Prayers lifted for you Dawg-brother. Hang in there and trust that He will pull you through.
Prayers up…wishing you all the best.
“‘If you can’?” said Jesus. “Everything is possible for one who believes.”
Mark 9:23.
Praying for you.
Thinking of you.
Man, that's a tough read. And I just said a prayer for you, brother! I sincerely hope things start to improve for you and you are able to get a transplant very soon.
Wishing you the very best! Hang in there!
I am so sorry you have had to go trough this you are a strong person you got this !!
How are you today? Just checking in. Our Prayers are with you. It’s off-season but Charlie Condon and Anthony Edwards are repping the G well. Go Dawgs!
I'm so sorry to read about your cancer journey and will add you to my prayers.
Thanks for checking up. One week out from last radiation and I think it’s going well.
Looking Strong! Keep on Keeping on. Great seeing a smile. Go Dawgs!
KEEP FIGHTING!
keep truckin’ like a doo-da Man!!